Monday, August 6, 2012

More in the World of Apraxia

After review appointments and repeated discussions and new referrals we were able to get in and see the Developmental Pediatrician. Whoot! And better yet... no waiting list!

Ryan was actually able to attend, which was probably a really good thing.

The doctor, though active duty military, was able to take his time (over an hour and a half) and go over Will's history, therapies he's received, progress made, deficiencies, and our goals. He was very personable and well-informed. He is even aware and knowledgeable on the Kaufman Materials and participated in the Apraxia Clinics when they were available in the area.

Overall he says that we are doing very well with William and he is making genuine progress. It is difficult and emotional that things seem to move slowly, but this is common with CAS. He gave us encouragement that it will get better and the small gains we are seeing now will really pay off in the next several years.

And in case you are wondering about those Apraxia Clinics I just mentioned, the doctor does not see any gain coming from us getting on the 9+ month waiting list. Will has already had speech therapy, occupational therapy, he has had a feeding evaluation and testing, feeding therapy, an MRI, evaluated by and endocrinologist, basic genetic testing/chromosome testing, an IEP, and professionals keeping their eye on him. So yeah, nothing new can come from trying to get into the clinic.

Additional good that came from this appointment: more referrals for therapy!

Besides Speech and Occupational Therapy which we already have referrals for, we now have a referral for Physical Therapy to work with his gross motor skills and Oral Motor Function Therapy (feeding therapy). The doctor set it up so that we should go to the same place for everything. Will likes his therapist there and the other therapists we've met have been great. The facility is pretty new and the environment is fun, friendly, and active. It is about a 25 minute drive but that's okay, we're going to try to schedule therapies so we only have to drive out there 2 or 3 times a week.

I'm very happy with how things went. Ryan agreed!

Now I just need to get a hold of the gymnastic place to enroll the kids... swimming lessons end this coming weekend so it's time to start something new.

And I can't leave without a picture:

Shout out to TEAM USA!
Those shirts courtesy of Grandma & Grandpa when we were at the Olympic Training Center in Colorado Springs


1 comment:

  1. I'm glad that the appointment went well. :) It sounds like you are going to be one busy mama going to different therapies. I'm glad that Will is doing well.